JOIN THE CHAIN OF SUPPORT
FOR GAUCHER DISEASE
If your life has been touched by Gaucher disease, or if you simply want to show your support, will you give us a hand?
Gaucher disease is a rare, inherited metabolic condition that, if left untreated, can cause lipids to build up in cells over time. This can result in progressive damage to tissues and major organs including the spleen, liver and bones, and, for some types, also the brain.1,2
Adding your hands to the chain will help to raise awareness of the disease and support the Gaucher community.
Â To show your support and help us build the chain, just follow these threeÂ simple steps*:
Take a picture of yourself with your arms outstretched, linking arms or holding hands with someone you care about
Share your picture on Instagram, FacebookÂ or Twitter** usingÂ #Together4Gaucher
Tag a friend in your post and invite them to take their own picture to add to the chain
* Your image may also be re-posted on Shire social media channels or used on www.spotlightongaucher.com/together4gaucher.
** We recommend checking that your account is set to public visibility in order to contribute to the bigger conversation when using the #Together4Gaucher hashtag.
Join our Thunderclap
The annual International Gaucher Day occurs on Saturday October 1st.
To mark the occasion and help promote awareness of Gaucher disease weâ€™re launching the #Together4Gaucher campaign.Â Weâ€™re inviting everyone from across the globe to share a photograph on social media of you with your hand outstretched, linked or holding hands with someone you care about, to show your support to the Gaucher community worldwide.
Donâ€™t forget to use the hashtag #Together4Gaucher
The chain of support for Gaucher Disease is growing.Â If you share a picture of yourself, use #Together4Gaucher so that it is added to the chain below.
Remember, images will be monitored so please stick to the rules below to make sure that your picture is included in our chain.
Photos must be appropriate â€“ no profane or indecent photos please.
We are unable to accept medical-related images or images that display brand names of drugs, depict patients receiving treatment, or which otherwise relate to specific treatments.
For your own privacy protection, we advise that you avoid using your full name and/or email address when uploading your picture or in social media posts.